Ian was visited by Santa this morning--he heard the bells all the way from down the hall. Ian got a special toy sack just for him filled with goodies like a Thomas the Train pillow, blanket, books, etc. We are so grateful!
Ian likes to take the oxygen monitor off his toe (it glows red so it is his Rudolph toe). He thinks he can get away with us or his nurse not knowing but alas the beeping of the monitor gives him away and he just giggles!
He got his NG tube out for Christmas. He at first didn't want it out because of the pain the tape removal causes him. I used a uni-solve pad and got it off as gently as possible but the actually pulling it up and out was just as traumatic. It is done and he is enjoying not having it as we knew he would. He has an IV in his arm that should be the next to go and then the one in his neck. He'll have his surgical drain and the staples for longer. We continue to mix his meds in milk or yogurt....and yes we have lied to him about it being meds.
Ian is currently on the floor (with a blanket) playing with his new engines. He knows them all and is a champ at recognizing them and telling you which ones he is still missing or wants. He lines up a huge train and gets frustrated when the cars in the middle topple. Ian has also discovered the joys of games thanks to a few new Christmas gifts. We played endless rounds of 'dont spill the beans' and he giggles every time it toppled. Clever game trying to teach the concepts of balance, etc.
Last night, Ian watched muppet christmas carol (my personal holiday favorite) and liked it. He took a long time to fall asleep as he was excited for Santa but alas did go to sleep so that Santa could leave his toys for him.
For Christmas dinner this year Ian had......chicken nuggets and chocolate milk and we let him. Cheetos are a new favorite as are donuts--we wonder if his new liver plays a role in this???
We've had a great day and Ian's says Merry Christmas everyone!
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