Sunday, January 31, 2010

Thomas PJs


We're still battling a bit on the dreams. Things are better but not 100% yet. Ian will have labs again this Friday and I am hoping that he doesn't have another prograf change as that would add to the dream issue. He is in his special Thomas PJs to help.


He spiked a fever on Saturday night so we've been watching him closely. He didn't go to church today and actually napped which is rare for him. I am hopeful his EBV is not up.


Tuesday, January 19, 2010

Prograf Dreams

Ian's prograf level changed (decreased this time) and with that has come the round of prograf dreams...bad dreams to be specific. I have spent a lot of time in his tiny bed trying to console him. It usually takes about 2 weeks for his body to adjust to the change so we should only have a few more days to go....hopefully. In the mean time, we are trying to deal with this side effect. I chase the bad dreams out each night and told them that they go to bad dreamland which brought on a whole round of questions I never anticipated. We are also going to make a dream catcher too. Any other ideas to help us with the dreams...send them on.

Sunday, January 10, 2010

Museum

We went to the Museum of Charleston recently and there was a gigantic polar bear there (Ian confirmed that it was not real many times). In honor of Ian's actigall from pre liver transplant here is a picture of Ian and Livy with the polar bear that is again, not real :)

Monday, January 4, 2010

EVB Levels

So we are hoping that today's labs show a decline in the EVB levels... that is Epstein Barr Virus which causes mono and the like. Ian is routinely tested for it as this virus can be pretty nasty in someone who is immunosuppressed. His levels have been running high so the transplant team has taken him off his cellcept to help curb this and we are watching things pretty closely.

As for happier things, Ian will be in the next class for Primary, CTR 5 and he is pretty excited about that. He also restarts preschool tomorrow. He also go to open more presents last week for Christmas when Grandma and Grandpa came which was definitely a highlight of the Holiday season for him.