Ian was really good for labs at MUSC on Friday. MUSC is getting better at being speedy too which is good. We found out that they can change Ian's PICC line dressing too which is excellent as we are hopeful not to need to go back to clinic for a while and his dressing has to be changed weekly. I continue to flush his line daily and got a new stock of syringes from clinic last week to do so. About 8:30 on Friday on my way to get Ian (Brett is taking him in and then we meet at a gas station near Brett's work to do the transfer) I get a call from the transplant team about Ian not needing to go to labs that day...too late. They could be a bit speedier in their communications some times. Ian is back to a M/Th lab schedule.
We have found an even better motivator for Ian to quickly take his meds and that is our new Wii that we got for Christmas. Ian loves to play it and we usually do it after dinner so he is quick to take them. I only need to threaten about Wii time in the AM for him to perk up and be a champ. We only have the Wii sports and Wii Fit (the real reason we bought is for exercise). He likes to bowl, golf and do baseball. He bowled over 100 last night and is really starting to get the hang of it.
He had a bit of a cold last week (despite my efforts to keep it from him by wearing a mask and germ-xing like mad). His labs were OK even with the sniffles. I put tissues next to him at night to avoid going in all the time. He has been having bad dreams recently which has made for some really long nights for Brett and me (also feeding Livia).
We hear tomorrow after labs if Ian will need to go back to Atlanta on Wednesday. Cross your fingers.
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consider them crossed
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