We got a call on Friday from CHOA that they are going to start weaning him off the prednisone. This is awesome. He is far enough out from his transplant and doing well enough that they are cutting him back to a M, W, F schedule. We are excited but also very cautious as this may trigger some rejection so he will keep his every other week lab schedule. Once he is off the prednisone, he will be on just one medicine, prograf, which he will be on for life. We are going to try to start teaching him to swallow a pill (about hte size of a tic tac) in yogurt or applesauce. We are hopeful it will be a quick learning curve so we don't have to continue to get the prograf compounded.
The call came the same day as our snow here in Charleston so in honor, I'll post pictures of Ian enjoying some playtime in the rare cold weather event here in the south. I am so glad that we were not admitted to CHOA last we so that Ian can be outside and enjoy this.
1 comment:
I'm glad he was able to play in the snow- he looks SO excited!
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