Sunshine

Ian's prograf makes him pretty sensitive to the sun....in almost every picture we have of him outside he is squinting, covering his eyes, etc. We are looking at getting him a pair of nice sunglasses to help with this issue as the cheapie dollar store ones aren't cutting it.

We still had some fun outside and Ian is getting better at peddling his trike!

Kindergarten Registration

Kindergarten Registration is fast approaching....next week in fact. I'm trying to gather all the necessary documents to take with us and just wrote a letter to our transplant team asking them to write a letter back with all the following stuff to help us get through the registration process.

1. Information as to why Ian has not had all of his vaccinations.
2. Information that Ian will be on daily medication.
3. A statement regarding necessity of school absences for Ian to have for labs, clinic visits, etc.
4. Any information the transplant team typically recommends school officals be aware of with a transplant patient.

We are now facing a new round of things like....
1. Does the school have a nurse?
2. What time does the school day start b/c this will in turn affect Ian's prograf time.
3. What do we do if Ian is out for long periods of time?

I am thrilled at the thought of Kindergarten and some what scared at all these new hurdles. Expect pictures of the actual registration process next week.

Lions, Ladybugs, and Penguins

Each day I work with Ian doing occupational therapy things as well as school. Today we were drawing pictures of animals. I draw and show him how to do it while he follows my instructions. I am NOT an artist so drawing anything is challenging for me....

Here is our lion

our penguin

and our spotted beetle (Ian's is only 2 years old apparently)

Our frog didn't make it to the picture reel. I'm going to have to work figuring out how to do it. Later, when asking him about his snack at preschool Ian described this to me.

"We had frosted flakes and we ate it like dogs. No spoons or milk. We also had cookies. "

"What type of cookies?"

"They looked like the hair of the lion."

And I knew that I had reached a level of artistry that I could be proud of because I knew exactly the type of cookie.....they are butter cookies that have a hole in them. I confirmed this with Ian who then told me that he used them a sunglasses :) I wish I had a picture of that craftiness!

Tic Tacs

We are working with Ian on being able to swallow a pill so he can take his prograf that way instead of via a compound. It will not only be cheaper but allow us to get the medication here in SC, and to keep some in our 72 hour kit, etc.

The transplant team encouraged us to try using Tic Tacs for Ian to practice with as his prograf pill will very close to that size. He is doing exceptionally and I think that maybe by the summer we will make the switch. He can swallow it usually on the first try but we are waiting until he can do that every time without any hesitation. Ian thinks it is great fun learning this--all because of the Tic Tacs. I got some that have both red and yellow in the package and he insists on swallowing one of each color at lunch and dinner. Bottom's up!