Thursday, March 19, 2009

4 meds

The team is pleased with Ian's progress. We are at our three month anniversary. Clinic visit yesterday was good. Dr. Vos saw us first and was pleased with Ian's progress. A review of Ian's meds uncovered the fact that we were no longer supposed to be taking one of them. No harm to Ian except it happens to be the one that he hates so there was much weeping wailing and gnashing of teeth that could have been avoided. Somehow we missed that communication from the transplant team.

Ian is now on every other week labs and down to only four meds. It is likely that he will be down to three in the next two months and then slowly back off the remaining three over a long period of time. He has lot a bit of weight but nothing too concerning. Dr. Vos also commented on the muscles in his arms and hands that they had atrophied some but would come back/start to really develop. This is great as it will really help his handwriting and other motor skills and coordination. The visit with Dr. Pillan was good except he didn't give Ian the usual piece of gum and Ian piped up to remind him of that. And the visit with Dr. Mee with filled with Thomas banter. We were able to be on the road before the main rush hour. We stopped for an ice cream treat and....yes special chickens (aka chicken nuggets).

We head back in mid April as we are at monthly clinic visits at this point. The day before clinic is the Transplant Braves game where transplant kids get to go to a Braves game, etc. Ian and Brett are definitely going but Livy and I may need to make an early exit.

Ian is doing great and I am glad that we have only 4 meds to deal with now.

1 comment:

M and B said...

I'm glad he's doing so well! That's too bad he had to take the medicine he hates when he didn't have to... oh well.