So Ian's PELD is a 12. It is labor day weekend. Holidays always make me nervous as they are big transplant times--more people travel=more accidents=more donor organs. I never thought of it that way until our coordinator told us.
This time of year (in about 2 days) will mark the three year anniversary of Ian's liver disease diagnosis. I will NEVER forget the phone call telling us to go to the ER immediately, etc. I will NEVER forget just breaking down and crying helplessly with Brett in the hospital bridge after the offical diagnosis and outlook was described to us. That day has been the absolute lowest of all my days and I hope I never have to relive anything like it and never would wish anything like that on anyone.
Ian continues to grow and develop wonderfully. He is into Thomas the Train right now and just earned Herold the Helicopter for making good choices for a week. He is working on earning another engine, likely Henry, for another week of good choices.
We meet with our new specialist on Tuesday and hope that he is as caring and concerned about Ian as our former specialist, Dr. Cordle in Roanoke. We have been really blessed with a great medical team that help Ian to be so stable.
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