It is six months to the day and date that Ian received his gift of life liver transplant. Hard to believe in many ways that we are at our half way mark to our year anniversary. All day yesterday and today I have been thinking about what we were doing six months ago and how very different our timeline is now.
Ian is down to three meds in the morning and two at night. That is going to be our routine for a long long time now. We are hoping to get him on pill/tablets at some point but for now we are fine with the compounds. The pharmacy we are using is fantastic and we love them! We are still facing some of the side effects from the medications but are managing. So far, the meds haven't produced anything physically to tackle such as large gum growth or cushnoid cheeks.
Ian still has labs drawn every other week and today at labs, he didn't shed even one tear. He is really such a champ! When he gives me a pretend check up, he does labs and even gets the details of srubbing my arm clean before he "gives me just a little poke".
I continue to put special T ointment on his surgery site every night. He reminds me if I forget somehow. He is also very well indoctrinated about Germ-X at this point which I am grateful for.
He has so much more energy now and his appetite is amazing. He finishes dinner often before we can which is a total turn of events from pre-transplant life where dinner would take 2+ hours to finish for him trying to get enough meat/protein into his diet.
We are so grateful for the team at CHOA, for the donor family, for those who helped us fundraise, and our family, friends and our communities that have loved us, prayed for us and supported us.
