Thursday, May 19, 2011

A good deal on yellow

Whose are mellow fellow all dressed in yellow?

Ian's class had yellow field day t-shirts. Here Ian is getting ready to do the batton race.
And his T-ball team, the Pirates, have yellow shirts too.




We are hoping that the summer reading program shirt will be blue or orange!

Monday, April 18, 2011

Great Clinic Visit

Ian had a great clinic visit at CHOA this last week. We don't have to go back to clinic for one year and have labs only every four weeks instead of the every two weeks. We are thrilled and feel very blessed. Doctor Romero was even the clinic doctor this last time which made Ian's day.
We also went to the Transplant Night at the Braves on Thursday while we were "in town". Ian ate the chick-fil-A this time and I got him cotton candy even. We only made it to the third inning but it was enough for Ian to still be talking about the game constantly.
Great trip to Atlanta and one we won't be repeating (hopefully) for a year!

Wednesday, April 6, 2011

Next Week

Next week we journey to Atlanta for a regular clinic visit as well as the "Night out with the Braves" game. We'll do labs there in Atlanta. We just had a prograf level change and so far no sleep interruption problems and I am hopeful that we will avoid those this time. I am also hopeful that we are very close to Ian switching over to a prograf pill instead of a suspension. I'll post pictures of our trip next week.

Monday, January 31, 2011

I'm great

I can't really complain that I haven't had much to update Ian's blog about. He had a round of flu but we managed to avoid going to the hospital thankfully. He is doing well in school (had a great first report card) and is learning to ride his bike quite well. Today we did a box tops page for his school as they are having a contest right now. He does a great job counting out the box tops for each sheet and then we tape them together.
We continue to work on swallowing the tic tacs so he can transition to a pill form of prograf. He is close but not quite there yet.

Tuesday, January 4, 2011

New Bike




Ian wanted a new bike, complete with a bell, for Christmas and that is what Santa brought! He had his first spin on it on Christmas day and since then we have been doing daily "rides" (aka up and down our sidewalk). He doesn't like going over manhole covers and has fallen off a couple of times but I am proud that he gets back up each time.

Friday, December 17, 2010

Second Liver Day

It's Ian's liver day today and we'll celebrate with cake tomorrow when Grandma and Grandpa (one set) can come. Ian is doing well as a 5 year old in Kindergarten. He likes reading, using his imagination and eating lots of snacks. This is him bundled up for school in the morning.
We've hit some important milestones in two years:

Labs only once a month
One med twice daily
Clinic every six months

Thank you to all who have helped us get to this point and especially the donor family who made this all possible.

Tuesday, November 30, 2010

The countdown

Ian is doing great. I purchased a new type of mederma for him that is purple in the tube and then rubs on clear which Ian thinks is pretty cool stuff. I think this may be the last tube we buy. He will always have the scar but I was hoping it would fade a lot more like his first surgery scar has.

At just under 5 1/2, Ian lost his first tooth on Thanksgiving day. He was visited by the tooth fairy and was most excited to find some money under his pillow the next morning. Suprisingly not too much drama with the tooth removal which was all Brett's department.
The countdown is on for Ian's second Liver Day (December 17th). We have so much to be grateful for these last two years and couldn't possibly name them all but please know that if you are reading this, you are a blessing to us.